A LITTLE BIT ABOUT US
BAM Support UK is a charity, set up in April 2015, with a huge aim -
© BAM Support UK 2016 -
Web Design: LJKuk
Gluten & Dairy
Professor Ramesh Arasaradnam -
I am delighted to be part of this initiative in setting up the BAM Support UK charity. This is long awaited considering those that have and continue to suffer with this condition if left untreated. Improving awareness both amongst clinicians and the public will enable a more prompt diagnosis and effective treatment to be instituted much earlier.
I am especially pleased how this has evolved from our first ever BAD patient group set up at UHCW NHS Trust in 2013. The group has grown and a website developed to provide important information especially for those newly diagnosed.
There is an urgent need for this condition to gain recognition given its impact on the lives of its sufferers. I therefore share the charity’s vision to raise awareness of this condition nationally, in order to improve the lives of those that suffer with BAD.
Nicola O’Connell -
I am thrilled to become one of the founding members of the BAM Support UK Charity. I started my role as research nurse in April 2012 working in the Gastroenterology department with Dr Arasaradnam and now work as a specialist nurse for patients with IBD. It was always his vision to start a patient panel for patients who have been diagnosed with BAM and to raise awareness. I hadn't even heard of the condition before and during my career as a nurse working on a colorectal surgery ward! Patients too have never normally heard about the condition till it has been diagnosed and suffer for years with symptoms of IBS and Diarrhoea and get put forward for investigations as they should.
Together we started the first BAM patient panel meeting in May 2013. This has proved to be successful and numbers have grown considerably since the first meeting. It has always been clear from the patients who attended that there is not enough advice and support available for patients being diagnosed and therefore the profile of BAM needs to be raised to ensure all medical professionals are aware of the condition and can enable patients to come to terms with their diagnosis and in turn be supported to manage their symptoms and treatment accordingly.
Meeting with patients with BAM has really opened my eyes to the challenges and frustrations that patients suffer with and has really encouraged me to become and advocate for patients and support them with this charity.
Our vision is that the charity can raise awareness, advice and hopefully a standardisation of services for patients and support them through the trials of living with BAM and I know this will improve many lives.
Michelle O’Connor -
Secretary / Deputy Chair
I am really delighted to have the opportunity to be one of founders of the BAM Support UK charity. I have suffered with Bile Acid Diarrhoea (BAD) symptoms since the age of 18. Like the majority of BAD patients my symptoms were significantly underestimated by clinicians and mine were continually "labelled" over 23 years as irritable bowel syndrome with severe gluten sensitivity.
I suffered years of frightening, as well as embarrassing, symptoms that often prevented me from leaving the house and working. Numerous medical practitioners repeatedly told me that I had to just accept that that I had irritable bowel syndrome. A year ago, after years of desperation, I was finally really listened to by a wonderful Gastroenterologist. Following a series of investigations, my SeHCAT scan results diagnosed that I have severe BAD (Type 2) and I was commenced on Colesevelam. Although living with BAD remains challenging, the quality of my life has significantly improved thanks to Colesevelam (my "miracle pills") specific changes to my diet and the invaluable support of family, friends and colleagues. The horrendous "helter skelter" moments (frequently urgent & painful dashes to the toilet) rarely occur now, my energy levels have improved and most importantly I now have my confidence back.
Throughout my BAD journey I have discovered that there is a significant gap in the awareness and early recognition of the condition, a wide variation across the UK in the ongoing clinical management due to limited clinical evidence and how daunting it can be as support networks and information resources for patients are virtually non-
Alex Hardwick -
My name is Alex Hardwick and I have joined the BAM Support UK patient support group.
I feel that my life so far as a sufferer of BAD and the understanding of what people are going through on a daily basis is a valuable tool to the team and I will be on hand to do what I can to help people when they come to the group meetings and social events. Don't be afraid to come along and get help and share what you’re going through, everyone is welcome and that's what we’re there for.
I myself have suffered with BAD for as long as I can remember -
I spent three decades being told that I had IBS(d) and suffered badly from chronic diarrhoea and many other medical conditions related to my condition.
Like a lot of other people with IBS symptoms the NHS just use IBS as a bracket to put you in if you have certain symptoms and you’re just told to go away and deal with it!
It was when I was in my late 20's that I got really bad and was constantly passing blood, very watery yellow stools and had such urgency to get to the toilet within 60 seconds that I decided enough was enough and started yet again another IBS investigation. It was only when I had moved counties and went to University Hospital Coventry where I met a gastroenterologist who diagnosed me with Type 2 BAD and a High Motility Disorder. It was a huge life changing moment where I was given the right medication and my symptoms changed dramatically. This was only possible with the right understanding of the doctors and the use of the SeHCAT scanner that they use to help diagnose BAD.
Don't get me wrong, BAD doesn't go away, you do have to live and cope with it but it is made so much easier when you have the understanding of what it is and how you can manage it. Here at the support group this is what we are trying to do, to give you the information and help that you need.
Dr Nidhi Sagar
I am delighted to be involved in the BAM Support UK charity which is an excellent forum in supporting patients with BAD as well as raising the profile of this condition to patients and healthcare professionals alike so that diagnosis and initiation of treatment occur much faster as, sadly, BAD is still commonly unrecognised and misdiagnosed.
I am a specialist registrar in gastroenterology and currently undertaking research in looking into new non-
I look forward to continue engaging with this very worthwhile cause in supporting patients and raising awareness of BAD.